Saturday, July 23, 2011

Off to Mayberry!!











After we left Ronald McDonald House we moved back over to our favorite house, Aunt Harriet's on Cloverly. We are so grateful to be able to stay here once again. Thank you Aunt Harriet and Jeanie for making it possible. We are missing not having Harriet here with us, but know she is recovering in the right place so she can move back home and be able to travel to her favorite place, up north.

We quickly got back into the swing of things with all our dear friends here. Josie wasted no time at all getting back to the the Little Club for more swimming. It is such a treat to be able to be members there even if it is for just a short time more.

Josie and Reggie also got back into there rock star routine with band practice at the Livingston's one night. We had a great barbecue there and then doing s'mores around the fire that night with the neighbors. It helps that the sun stays up until 10 PM. More time for playing!

Swim Chicks practice started as soon as be got back. Josie is so happy to be in her 3rd year with the team. It is such an incredible program and one of the great joys in her life. The show will be the day before her 10th birthday. I will post a lot of pictures and video after the show.

It is weird to be staying for such a short time. We are so used to staying for months. We are grateful for whatever time we get here. It is our Mayberry. Jenny and Josie

Ronald McDonald House Detroit, Michigan





We are back in Michigan for a quick "tune up". Our adventure started out staying at the Ronald McDonald House in Detroit right next to Detroit Children's Hospital. We were grateful to get a room there. We had a humbling and wonderful experience there meeting so many families. It was a difficult setting but so many had such great hope and faith. We met an brave woman named Donna. Her twin boys were born 9 days before we got there at 25 weeks. Sadly, one of them only lived on earth for 2 days. She was having to grieve for one and put all of the rest of her strength into keeping focused on Gabriel. I felt blessed to have known such a courageous mom. Happy to report that when we returned 2 weeks later to cook lunch for everyone, we got to see Donna and find out the sweet Gabriel was still fighting hard. He was up to 2 lbs 7 oz and was being taken off the breathing tube to breath on his own. They have a long road ahead since his due date was October 8th, but he has a mom who loves him so much. Stay strong Donna, my friend. We met so many with extraordinary stories. I actually had a lot of guilt that we were on the recovery road. These families have such a fight in front of them. I am thankful that (hopefully) most of that is behind us. I know we still have things to do, but it makes it easier to take when Josie is doing so well. Thank you Ronald McDonald House for taking care of us for a few days. It will be an experience that we will never forget and will be grateful for the time we got to spend there. Jenny and Josie

Father's Day Weekend in Tahoe
















Father's Day weekend at Martis Camp in Tahoe with Brian, Michele, Matt and Trent was magical. We had such incredible weather and better company. Josie had a ball with the boys. It was none stop fun. Matt, Josie and I went bowling at the barn. Upstairs in the barn there is an amazing art loft. Josie and Matt enjoyed doing their art work. We went all over Martis Camp one day. The new facilities are unbelievable. We also went to Father's Day brunch at Sunnyside by boat. It is always great to be on the water. Josie loves the water more than anything. Thanks Brian and Michele for having us. We love you all so much and miss not being together. We hope to return there when we get back from Michigan. Love, Jenny and Josie

Tuesday, June 7, 2011

9 Years and 4 Years



My angel, Cris Embleton, whom we are eternally grateful to for making it possible for the girls to come here. We love you Grandma Cris!!

What a celebratory day it is in our family. Josie and Teresa arrived conjoined at the head from Guatemala 9 years ago today. I never in my wildest dreams knew how much my life would change for the better when that plane touched down at Burbank airport and I was able to set my eyes, heart and hands on them for the first time. What a pleasure it has been to love these girls so much and to be surrounded by their greatness.




Happy 4th Birthday to my sweetest nephew, Luke Michael Richards. You are are bubbly, fun and energetic 4 year old!! You bring so much excitement and joy to our lives. It was another blessing that you also arrived in our lives on June 7th.


Look at how hard they hare laughing!! What joy these two have together.

Because they say things come in 3's, June 7th 8 years ago we got Josie out of the hospital after they returned to LA from Guatemala. This is the moment that she launched into my life for good. We Love June 7th!!! Thank you God for the blessings of this day and everyday. Love, Jenny and Josie

Adorable video of the girls laughing together. I thought Teresa was going to start belly laughing when Josie was doing this. I love these moments.

Wednesday, June 1, 2011

Doing well

Josie has been doing so well. She wanted me to write on her blog that she is doing really well in school. She is learning so much and loves to be with her friends. She is such a little peacekeeper. It is great to see the other kids embrace all of her abilities and adapt to her disabilities.

Tonight we went to Party City to get some supplies for her Girl Scout camp out on Friday night. I missed a great opportunity for a photo op. She was in her stander, glasses on, pink purse over her shoulder and her red super hero cap around her neck. Priceless.

She has been using her Polish walker with Joy at PE and really increasing her distance. She will be running with it soon, I hope. Thanks for checking in. Love, Jenny and Josie

This is dictated by Josie...PS. She loves school. The End.

Monday, May 30, 2011

Catching Up

Just to do a quick catch up on our lives...






My adorable Brownie troop did their bridging to become Girl Scouts. They are the cutest troop. We started in kindergarten as Daisys and then brownies and now girl scouts. The 7 in our troop have been together since kindergarten and we have such a good time together.







Here I took them to see the taping of Price is Right thanks to my brother-in-law, Mike, who is the executive producer. They normally don't let kids under 16 to come, but Mike made an exception for his niece, Josie. I renamed it as "take your niece to work day". The girls were so excited and extremely well mannered. They got to sit on set while they did the rehearsal. They loved standing on the side of the stage when they loaded the audience in. It was like a huge party with music and the crowd going wild. The girls were waving and dancing. Just before they started taping, we went backstage to watch from the green room. There they met Drew Carey and George, the new announcer. The girls thought they were big stuff to be sitting backstage. They are too young to be in the audience while they tape. The models were coming back to dance with them in the room. Afterwards they got to go back on stage and be with Mike and the models. It was so cute to watch them. Funny story... as we were driving home from the show we were talking about it and what fun things they wanted to do next year. I mentioned that maybe we should go camping. Here I think I am being so big and brave to camp with all of them and especially Josie. I mention this and at first they all thought that sounded really great. Then one of them says, "hey Jenny, do you think we could take and RV?" Seriously??!! I have to admit I do like their thinking. Now can you see me rolling down the highway with a huge RV and 7 nine year olds in back to go camping? A few seconds later one of them said, "maybe we should just go to your desert house instead." You have got to love my troop. They are smart enough to know that the best idea is comfort. Love them!




A little update on the walking front...We got to Liz's for therapy a couple of weeks ago and as we were coming into the room Liz was setting up the table for Josie. There in from of us was one of her old Polish walkers that she first used before canes. I set her down and put her hands on the walker so she could stand there until Liz was ready. All of a sudden she went darting across the room all by herself. So so the next 45 minutes she walked all over the clinic by herself. It was so amazing to see the joy and realization of complete independence come over her. So we became indian givers and took the walker right back. She now asks to walk. In fact today she walked in and out of the country club for lunch. She walked in Sport Chalet the other day and obviously is using it all over the house. She is still using the canes because we absolutely have to keep those up too. Fun to watch her enjoying walking.



Friday was Have lunch with your Kid Day at school. Luke got to come with me, which he loved. We had a picnic with a few of Josie's friends and her most wonderful aide Mrs. G. Mrs. G is beyond fabulous with Josie. They love to be together and I have peace of mind knowing she is safe with Mrs. G. All the kids love Mrs. G as well.



We have been to the desert a for couple weekends now. The weather has been great and so much fun to swim. Josie is in heaven out there. She even got to have a play date with her friends Sofia who has a house down the street from us.


We have been busy, but happy and Josie has been really healthy, thanks be to God. We do need some prayers though for 2 of my uncles. My dad's baby brother Greg was diagnosed 2 weeks ago with Multiple Myloma. My mom's brother Steve was diagnosed on Friday with Melanoma that has metastasised. Please keep both of them and all our families in your prayers. We know that prayers work. We have witnessed miracles. We are asking for 2 more.

Thanks for checking in with us. We are gratefully always for every one's support. It makes this journey such a special one. Cheers, Jenny and Josie

PS. Too tired to proof read this, so my apologies now for misused and/or misspelled words!! Night.

Tuesday, May 3, 2011

Good Day LA

This is just a little press release about an interview that Josie and I are doing tomorrow.
I will try to post it on here after we are done...if it turns out ok!!



Mending Kids story told on Fox 11 Good Day LA


Almost 10 years ago, Josie was born as a conjoined twin and was successfully separated by a huge team of surgeons at UCLA Medical Center. Tune in tomorrow between 8:00am - 10:00am to Fox 11 Good Day LA morning show to watch a wonderful interview with Jenny & Josie Hull and hear more about their incredible story.