Friday, July 16, 2010

Possibly Some Independence???

Look at how straight she is in this.

What a very interesting day. To give you a little background first. As most of you know, I refuse to succumb to a wheelchair for Josie yet. I know that it is almost a fact that the moment children get into wheelchairs it is almost impossible to get them to walk. It is hard work to help these children accomplish any kind of mobility. I have been lucky that I have had people working with Josie who support this no wheelchair yet notion. The one thing I don't want to deny her is some kind of independence especially as she is getting older now that doesn't hinder her walking progress. I got a call from Joy (her P.E. therapist from home in CA) who is always onto of the latest and greatest in the physical therapy world(she is the reason we are even in Michigan). She told me that she has found an electric stander. The bad news is that there isn't a vendor in California so there isn't a demo there, but the good news is that the company is based in Michigan...hot dog we are here. I got ahold of the company on Wednesday and Todd came today with the Standing Dani. I can't even begin to tell you the greatness of this machine. She is standing in perfect alignment so the health benefits alone are so remarkable you can't believe it. The demo had more accessories on it that she doesn't require which is great. Also the wheels on the demo are wheelchair wheels, she will be getting 12 inch wheels. Todd and I put her in it and he turned around to get something. As he turned he was saying that he would teach her how to work the joy stick so she could make it go. Too late, she was already halfway out the door and then headed down the hallway by herself on the way to Przemek's room to show him while calling out, "see you later Mom". The greatest words ever to hear from her. She spent the next hour and a half using this. She went all over the gym, outside, down the hallways by herself. We had to drag her off of it after that time. She went to bed dreaming of getting her own. Freedom!! I am thrilled and now will start the process of getting insurance to cover it so we can get it for her. They are really expensive.

What a glorious day. Tonight we got to spend time with some of the Hull cousins that came into town. What a treat to see all of them. Josie was thrilled to have the younger cousins here to play with. Off to bed after a big exciting day. Sweet dreams, Jenny and Josie

3 comments:

  1. Josie Bug - you are too cute!! Keep up the amazing work with Rita and Lilly! Thanks for keeping us in the loop Jenn! Miss you girls!
    xoxo

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  2. That is AMAZING! Josie you'll be walking and riding!

    Ann, Doug & Cole

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  3. Josie, You are truly an inspiration to us mere mortals! I can't wait to see you in Houston. :) Robin (the nice one)

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