Hi all- very productive day at therapy. There is a new rule at home set by Przemek...there is absolutely no carrying of Josie allowed in the house. She is to use her walker when ever she needs to get somewhere and to practice the shorter distances on her canes!! 2 exceptions to the rule. 1st thing in the morning she can be carried to the restroom before getting dressed and she can be carried after getting out of the bathtub. That is it. We started this new regime tonight and it was fairly seamless. This isn't just difficult for her it is going to give me a new level of patience which will be health for me. I will have to be more organized and not so rushed to get everywhere because it will take us longer to do things. In the long run it will be the best thing for both of us.
Josie had tutoring after therapy today so we had to get home for that. We took a nice bike ride after tutor. She collected so many beautiful leaves. It was almost 70 today and this evening. We welcome warm weather.
I just got off the phone with Teresa's dad, Werner, and he was saying that Teresa is doing so incredibly well they tried to release her to go home from the PICU TODAY!! She is only 24 hours post op. That is improvement. Werner so smartly requested her to stay at least one more day to finish IV antibiotics and make sure her labs stay normal. She will go home tomorrow afternoon or Friday. This is still 4 days earlier then expected. She has had a long month at CHLA. Bless all there who took such great care of her during this difficult time. Werner and Florie wanted me to express their deepest gratitude for all the prayers that were said for Teresa during this time. They know that they helped. Goodnight to all. Jenny and Josie
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