Monday, November 2, 2009

"You are not is Kansas anymore"

Sweet Izabella keeps reminding us that we aren't in Kansas anymore and need to get with the winter program. More layers of clothing!! I put them on and we walk in somewhere and we are striping everything off because it is so hot from the heater. You would think Josie and I were having hot flashes at 8 and 38. Yikes!! Izabella knitted Josie the most lovely hats this weekend. She doesn't want her cute little head to get cold. They are so beautiful and more beautiful that she would do this for her. Thanks Bella! You have taken such great care of both of us for the past 3 years. The Pediatric Fitness Center crew is like our family. We are so grateful for all of you.

Speaking of family, sweet Aunt Harriet went to Florida today(smart woman it is 85 down there). After Josie heard the garage door close this morning she burst into tears saying how much she didn't want her to go and that she would miss her. We have been so blessed to have the time here with her. If it wasn't for her generous hospitality and letting us stay in her home this summer and fall we would not have been able to stay. Josie has achieved so much in this time. Thanks Aunt Harriet. We love you and will miss you. Can't wait to see you soon.

And for therapy today...IT WAS AWESOME! You should have see my hero walk on those canes. It is getting to be so methodical. She walked so far with so much independence. The achieved something great today. Przemek has been persistently working on reconnecting the brain patterns so she can actually learn or achieve the ability to have falling reflexes. Well today when she was starting to fall backwards the automatic response kicked in and she was able to catch herself and pull her body up. Unbelievable. This is the most important response because it will save her from hitting her head. She didn't do it just once but about 6 times. He even started, and let me reiterated started, the process towards independent steps. This process could take a year to complete. Exciting that it has officially begun. You can see in the video that he has her walking with one parallel bar. It is her first attempt at this and she does fairly well. My battery died so you don't get to see the next part where she has to let go and hold herself up for 6 seconds. She even made it to 9 seconds one time. We just need 3 more weeks of this. so exciting.

Sadly, today we got word that sweet Rachel MacLeod's father, Rob, passed away yesterday after a very courageous and long battle with cancer. Our prayers and love go out to the MacLeod Family. Rob was taken to heaven on All Saint's Day which has to be the biggest celebration in heaven. No doubt he made the celebration more fun. Today would have been Rob's 55th birthday. Peace and love MacLeod Family.

Before going to bed we got an email from Judy Kelly that had a video of the Hoyt father son team that do all the races together. The son has severe cerebral palsy and yet they do marathons, triathlons and the Ironman together. Son Rick and walk or speak but he can do race. Dick, thae father is the body, Rick, the son, is the heart. If you want to see real inspiration check them out on Youtube. They are definitely my inspiration. Good night, Jenny and Josie

1 comment:

  1. Jen and Josie Bug - Thank you for your kind words about my dad. It has been a tough couple of days but I know he is in a better place now, pain free :)

    Hope all goes well at the doctors. Keep up the good work Josie, you truly are inspiration to us all (you too Jenny)! Miss you guys lots!!

    xo -Raych

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